2 steps forward 1 step back

To start.. I know a few lovely comments have been sent to us in previous posts.  I would like to thank you for the comments, as google, the owner of blogspot, has had issues with letting us reply to the comments.  I would like to take this time to thank you for leaving a little note for us, we believe the positive thoughts and prayers have assisted us in coping with this new world we live in with Channing. Though he hasn’t spoken a word and for such a small person, he has made a huge impact on many.  It is amazing the out reach and support Channing has created. Every thought, prayer, and mode of support we (he) receives we get stronger, so thank you all for keeping up-to-date.
Today started off with a little pampering, a haircut for the both of us; these are the small moments we get to decompress.  After my 5 minutes of fame, Vaness’a hair stylists moved to her, it was a much needed time to relax.  I headed off for the official paperwork from the county clerk in Ann Arbor, Channing’s birth certificate.  Once I received the copies I walked across the street to a coffee shop.  I paid for an hour of parking so I definitely took advantage of that hour.  I sat down dead center of the sitting area with my hot freshly brewed coffee in hand with all other patrons around me.  Wondering if I was accepted in this space I sat down confidently anyway.  I was not there to write a paper, research, or catch up with an old friend.  I was there to take a moment to reflect on my current blessed world I (we) currently live in.  Being the nucleus of the coffee shop, considering our circumstances, I had a quick thought of whether I was the most important patron within the small world of coffee drinkers.  I believe I was.  Since Channing was born I (we) have had the most focus and positively charged way of life, he has changed how we view each and every day, down to the minute.
Today comprised of a few "setbacks." I put setbacks in quotes since clinically Channing is doing very well since his birth, however, the care team is continuously challenged by his needs.  One day he needs breathing asssistance and one day he doesn’t. Well today he needed it and a litte more.  He started out early in the morning with a nasal cannula on 25 percent oxygen, room air is 21 percent.  He was getting a little bit of help.  He ended the day on a high flow nasal cannula with assistance for expiratory pressure; this was all because Vanessa, me, and family pointed out to the nurse that his breathing became increasingly labored throughout the day.  The change to the high flow nasal cannula was coupled with dialysis fluid changed to a 4.25% dextrose concentration, the highest there is.  We are thinking both NICU doctors and nephrologist are trying their best to better his breathing ability with increase oxygen and increase output (urine).  We will see when we call to get an update in the morning.  We are still not used to calling to get an update on our baby boy, we probably never will be.  One day we will be able to check on him upstairs in his room, his nursery.  However, until that day occurs, this is what we have to do.
Ok ok, enough with the sappy sapp and getting to the positively charge nucleus we live in (trying our hardest). We had another great moment today. Grandma "Gigi" Lawrence was able to hold her grandson for the first time. Again, we were elated for this moment.  Little by little we enjoy positive moments as they are granted.